Support Groups
Empowering Brain Tumor Patients Through Support Group Programs
Brain tumor support group meetings provide an opportunity to share experiences, to learn about current therapies, and to receive information about various aspects of a brain tumor diagnosis and treatment. The coronavirus (COVID-19) pandemic has impacted our ability to conduct face-to-face meetings. Many, if not all, support group meetings have been moved to a virtual platform. However, this has allowed many more to join the conversation and gain a community of support. All SBTF hosted or co-hosted events are listed in our Event Calendar. Questions can be sent to supportgroups@sbtf.org
METRO-ATLANTA AREA PROGRAMS:
Emory st. joseph's brain tumor support group
The Brain Tumor Support Group at Emory St. Joseph’s Hospital –
The Brain Tumor Support Group at Emory St. Joseph’s Hospital meets virtually on a bi-weekly basis. Hosted by the SBTF, we aim to provide an opportunity for information sharing and support for brain tumor patients, as well as their family, their friends, and their caregivers.
For more a Zoom invitation to join the meeting, please email us at info@sbtf.org
Every Other Thursday
12:30 pm – 2:00 pm (ET)
Farnaz Arabshahi, FNP- C
and Geri Shaffer, Patient Advocate for the SBTF
To RSVP and receive further details, please email
farnaz.arabshahi@emoryhealthcare.org
or call Farnaz at (404) 668-9511
Northside Hospital - Forsyth Brain Tumor Support Group
Group meetings are open to brain tumor patients and caregivers who are dealing with a brain tumor diagnosis.
The 4th Tuesday of each month
11:30 am – 12:45 pm
Please RSVP three days prior to the event. Call (770) 667-4117 and specify your name and number of attendees.
Laura Karfeld, LCSW
Kyeda King, LCSW
This event is sponsored by Northside Hospital Cancer Institute. There is no cost to attend.
SBTF Aphasia Support group
Aphasia (uh*fay*zhee*uh) occurs in 30-50% of people with brain tumors and brain cancer. Did you know, aphasia from a brain tumor is different than aphasia caused by a stroke? People with brain tumors who have difficulty thinking of words and naming items, they may be experiencing “anomic” aphasia. Our Aphasia support group provides insights, helps identify tips and tricks of working through this diagnosis, and provides a sense of community where we work together to improve language & communication skills.
The support group meets virtually using the Zoom platform.
The support group meets bi-weekly via Zoom at 12:30 - 1:30 pm ET on Thursdays. Please inquire for the next date at supportgroups@sbtf.org
Please contact us at supportgroups@sbtf.org for the Zoom invite and details of the next meeting.
The Piedmont Brain Tumor Center – Atlanta
Piedmont’s Brain Tumor Center currently offers TWO monthly brain tumor support group meetings; both are conducted virtually via the Zoom Platform.
The Young Adult Survivor support group meeting provides the young adult brain tumor patient an opportunity to meet other Young adult brain tumor survivors, discuss or share experiences, and ask questions about treatment plans or effects of treatment on your physical & emotional health.
Brain Tumor Caregivers need a support team too. Caring for a sick or disabled individual is complex. When the illness lasts for weeks, months or years, the complexity is heightened. Our Caregivers support group meeting will provide education, insights, and an opportunity for asking questions and receiving answers.
Meetings are held virtually to allow for patient safety and to allow patients from all over to join the conversation.
Young Adult Survivor:
The 2nd Tuesday of each month from 7:00 pm – 8:30 pm
Caregiver:
The 2nd Wednesday of each month from 7:00 pm – 8:00 pm
To RSVP and receive further information, please email brittany.lawton@piedmont.org
brittany.lawton@piedmont.org
National brain tumor society (NBTS)
The Brain Tumor Support Conversations are an online support group run by the brain tumor community for the brain tumor community. This group is attended and run by patients and care partners who have had firsthand experience with the challenges and effects of a brain tumor diagnosis.
This support group is a safe space where patients and loved ones can talk about the feelings and emotions that accompany any aspect of the brain tumor experience.
These online support group conversations are held on the third Sunday of each month at 7 pm ET/4 pm PT. You can sign up to join the conversations here. After you sign up with your email, you will receive a confirmation email and it will allow us to stay in touch with you.
These online support group conversations are held on the third Sunday of each month at 7 pm ET/4 pm PT
You can sign up to join the conversations here. After you sign up with your email, you will receive a confirmation email.
Atlanta provides a variety of support services for cancer patients and their families. All programs are led by licensed therapists and professionals with years of experience in offering encouragement and hope. Affiliated with Northside Hospital, CSC-Atlanta offers classes to all people affected by cancer, regardless of where their treatment is being managed. Weekly support group meetings as well as classes like “Grief & Loss” are held monthly and require an RSVP. The Cancer Support Community is within easy walking distance of the Medical Center MARTA Station.
Visit the Wellness Community’s website calendar to view programs being offered:
Florida Programs:
The Brain Tumor Support Group of Northeast Florida and Southeast Georgia
Convenes either in the Adam W. Herbert University Center at the University of North Florida, or virtually on Zoom. This group takes place on the 3rd Saturday of each month from 10:00 am – 11:30 am. Meetings are open to patients with primary brain tumors, their caregivers, and loved ones. Ages 18 and over.
To confirm meeting time and location, as well as to RSVP, please contact SupportGroup@BrainTumorNetwork.org or call Brain Tumor Network at (844) 286-6110.
University of North Florida or Zoom
Adam W. Herbert University Center
12000 Alumni Drive
Jacksonville, FL
To confirm meeting time and location, as well as to RSVP, please contact SupportGroup@BrainTumorNetwork.org or call Brain Tumor Network at (844) 286-6110.
3rd Saturday of each month
10:00 am – 11:30 am
To confirm meeting time and location, as well as to RSVP, please contact SupportGroup@BrainTumorNetwork.org or call Brain Tumor Network at (844) 286-6110.
Online Programs:
National Brain Tumor Society Online Brain Tumor Support Conversations
The Brain Tumor Support Conversations are an online support group run by the brain tumor community for the brain tumor community. This group is attended and run by patients and care partners who have had firsthand experience with the challenges and effects of a brain tumor diagnosis.
myCancerConnection
Is a cancer support community that offers free, one-on-one support. Support is open to patients, caregivers, and survivors regardless of where they receive treatment. Trained survivor and caregiver volunteers are available to share their cancer experience with you. Call (800) 345-6324.