In August 2025, a groundbreaking White Paper was published in Neuro-Oncology Advances—marking a pivotal moment for adult CNS tumor treatment in the United States. Our Patient Advocate, Geri Shaffer, was a part of the team to create this resource.

Titled “Guiding Principles for Adult CNS Tumor Treatment Programs,” this first-of-its-kind resource outlines what truly defines specialized, comprehensive care for patients facing a brain tumor diagnosis. It’s designed to empower patients and their loved ones with the knowledge to seek out expert, compassionate treatment programs tailored to their needs.

Whether you’re navigating a diagnosis or supporting someone who is, this paper offers clarity, direction, and hope. Read the White Paper at https://loom.ly/Tn4wgts

Central nervous system (CNS) tumors require specialized care to promote better patient survival outcomes and life quality. Before this paper, there were no published guidelines identifying what constitutes specialized, comprehensive CNS tumor treatment and care in the United States. Consequently, members of several CNS tumor patient advocacy and not-for-profit organizations established a set of Guiding Principles by which adult CNS tumor treatment programs could be evaluated for the availability of specialized services offered. These Guiding Principles for CNS tumor treatment programs are the first tool of its kind in the United States. Patient advocacy and not-for-profit organizations that support the CNS tumor population can use these guiding principles to help patients and their loved ones make more informed decisions about where to seek treatment and care.